I am in the process of establishing a non profit called the Medullary Cystic Kidney Disease Foundation. I have filed with the State and Federal, now just need to apply for section 501(c)(3) status. From there I plan to establish a website and make plans to provide a resource for families and patients with this disease. Goal is to do what we can to slow down or stop this disease; and increase awareness of living kidney donation. More info to come.
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